Burning Mouth Syndrome
I'm starting this blog to create a forum for exchanging comments, information and resources for people suffering from Burning Mouth Syndrome. I was diagnosed with the condition in September, 2006. So far attempts to treat it have been unsuccessful. My symptoms include burning in the front part of my mouth, an extremely sore roof of the mouth, and a persistent sore throat. It's not so bad in the morning, but gets worse throughout the day.
My story started in July, 2006, following oral surgery for extraction of a tooth. A week after the surgery I was feeling better but I realized that it hurt to eat canned tuna fish. I suspected it was a result of using the harsh mouthwash, Peridex, that was prescribed for use for three weeks after my surgery, so I asked my oral surgeon if I could stop using it. He said yes, I could use warm salt water instead.
But the pain persisted, and several visits to the oral surgeon and regular dentist didn't help. I found information about Burning Mouth Syndrome on the Internet, including something from the American Academy of Oral and Maxillofacial Pathology (www.aaomp.org). They sent me a list of oral pathologists in Texas and I was able to get an appointment with Dr. Anna Jones at the University of Texas Health Sciences Center Faculty Practice Clinic (http://dental.uthscsa.edu/patientcare/faculty.html) in San Antonio, the closest city with oral pathologists to my home in Austin. They seem to be primarily associated with dental schools.
Dr. Jones said I had a classic case of burning mouth syndrome. She said it is primarily caused by anxiety and depression and suggested that I see a psychiatrist. I immediately resisted that idea, saying "I'm not depressed." But I realized that I had been stressing incredibly about things that turned out to be not worth worrying about, like my oral surgery, work, and other unrelated issues. She also suggested that I see a gastroenterologist as acid reflux could be causing my sore throat. She prescribed an oral rinse, dexamethasone, saying it was not a permanent solution but might help ease the inflammation.
A few weeks of the dexamethasone didn't help so I decided to see my GP instead of going to a psychiatrist. As I understand it, these days most psychiatrists just prescribe medication, and my doctor can do that. He put me on nortriptylene (an anti-depressant) and Lyrica (an anti-inflammatory? I can't remember now) and told me to come back in a month.
None of these medications seemed to be helping so I went back to the doctor a week ago and he switched me to Cymbalta, which is used to treat both depression and pain. I don't think I've been taking it long enough for it to kick in yet and haven't reached the maximum dosage, but my mouth feels worse than it did before. Maybe the other meds were helping after all, in such tiny increments that I didn't notice. However, I really think it had started feeling worse before I changed prescriptions, so maybe it just goes through cycles. I'm going to stick with the Cymbalta long enough to see if it makes a difference.
This is my first post--later I will write about some of the emotional ups and downs I've been through. I welcome your contributions to my blog. If anyone has received help for this condition, I would like to hear about it. I would also like to start an exchange of information. (Where do you get original flavor Biotene toothpaste? Not the original fresh mint flavor.) And I'd like to start sharing recipes that those of us with BMS can eat -- soft, mild foods that taste good! I'm a native Texan, and I'm suffering severe withdrawal from Mexican food. I plan to post some recipes later, too.
I look forward to hearing from you.
Angela Winston
My story started in July, 2006, following oral surgery for extraction of a tooth. A week after the surgery I was feeling better but I realized that it hurt to eat canned tuna fish. I suspected it was a result of using the harsh mouthwash, Peridex, that was prescribed for use for three weeks after my surgery, so I asked my oral surgeon if I could stop using it. He said yes, I could use warm salt water instead.
But the pain persisted, and several visits to the oral surgeon and regular dentist didn't help. I found information about Burning Mouth Syndrome on the Internet, including something from the American Academy of Oral and Maxillofacial Pathology (www.aaomp.org). They sent me a list of oral pathologists in Texas and I was able to get an appointment with Dr. Anna Jones at the University of Texas Health Sciences Center Faculty Practice Clinic (http://dental.uthscsa.edu/patientcare/faculty.html) in San Antonio, the closest city with oral pathologists to my home in Austin. They seem to be primarily associated with dental schools.
Dr. Jones said I had a classic case of burning mouth syndrome. She said it is primarily caused by anxiety and depression and suggested that I see a psychiatrist. I immediately resisted that idea, saying "I'm not depressed." But I realized that I had been stressing incredibly about things that turned out to be not worth worrying about, like my oral surgery, work, and other unrelated issues. She also suggested that I see a gastroenterologist as acid reflux could be causing my sore throat. She prescribed an oral rinse, dexamethasone, saying it was not a permanent solution but might help ease the inflammation.
A few weeks of the dexamethasone didn't help so I decided to see my GP instead of going to a psychiatrist. As I understand it, these days most psychiatrists just prescribe medication, and my doctor can do that. He put me on nortriptylene (an anti-depressant) and Lyrica (an anti-inflammatory? I can't remember now) and told me to come back in a month.
None of these medications seemed to be helping so I went back to the doctor a week ago and he switched me to Cymbalta, which is used to treat both depression and pain. I don't think I've been taking it long enough for it to kick in yet and haven't reached the maximum dosage, but my mouth feels worse than it did before. Maybe the other meds were helping after all, in such tiny increments that I didn't notice. However, I really think it had started feeling worse before I changed prescriptions, so maybe it just goes through cycles. I'm going to stick with the Cymbalta long enough to see if it makes a difference.
This is my first post--later I will write about some of the emotional ups and downs I've been through. I welcome your contributions to my blog. If anyone has received help for this condition, I would like to hear about it. I would also like to start an exchange of information. (Where do you get original flavor Biotene toothpaste? Not the original fresh mint flavor.) And I'd like to start sharing recipes that those of us with BMS can eat -- soft, mild foods that taste good! I'm a native Texan, and I'm suffering severe withdrawal from Mexican food. I plan to post some recipes later, too.
I look forward to hearing from you.
Angela Winston
posted by Angela Winston | 4:26 PM
42 Comments:
Wow, sorry to hear about this...I intermittently have the same syptoms...I have been diagnosed with Lichen's Planus...autoimmune dysfunction the way I understand it...aggravated by stress. A number of individuals in my family have it, some with sypmtoms that sound very much like yours. Did they mention Lichen's Planus? Or rule it out? Sounds just like my brother's symptoms - he also suffers from chronic depression and uses Wellbutrin.
No, I never heard of it before. But I don't have any bumps or discoloration in my mouth; according to one website I found, that's one of the characteristics of Lichen's Planus.
I also suffer from burning mouth syndrome and am struck by similarities in our stories. My symptoms began in Dec. 2005 after a tooth was extracted. I think that the new space between the remaining teeth somehow irritated my tongue, and I began to have a salty or bitter taste in my mouth all the time. In addition, I had yet another tooth extracted in May 2006, and then the BMS started and has worsened steadily until now.
I also find that the condition is mildest in the morning and worsens as the day goes on. The tip of my tongue is the most sensitive. If I eat anything spicy or too hot or minty at the end of the day it can cause extreme pain.
I was recently diagnosed with Candida and have a white-coated tongue in the morning. I am being treated by a practioner now, as regular doctors were not able to solve this problem.
The advice on the Mayo Clinic website may be right; BMS
may be a matter of low zinc or vitamin B.
Jul
http://www.candidacandor.blogspot.com/
Hello Angela
I have suffered bms for thirteen years. I gave up searching for a cure some years ago but sometimes it is so bad, I have a foray onto the net to see if anyone has found a cure yet. There are an estimate three million sufferers in the UK alone so you would think that a cure would have been found by now. As you say, the condition is not life threatening but boy can it make your life a misery. It is not an actual pain in the mouth but a feeling that someone is pouring salt on an open wound causing incredible soreness. Painkillers are ineffective as you have probably found out. If you look in my mouth, it looks healthy. My symptoms mirror yours. My crutch is sugar free gum. It is less than attractive for a 58 year old woman to chew gum but if I did not do so, I would go mad. I don't know anyone else who suffers from this condition but it isn't something you actually talk about because it is difficult for anyone to understand as it is not a condition that you can actually see. Don't feel guilty about feeling sorry for yourself. This condition is horrendous.
I wish you luck in your search for a cure. I understand that the condition sometimes spontaneously disappears. I live in hope.
If things get too bad e mail me on elena@brooklyn11.fsnet.co.uk and we can compare notes.
Regards,
Thanks for your input. I'm glad people are finding my blog. I haven't tried sugar-free gum--I haven't chewed gum in years because I have so many fillings and crowns. I know there are some nonstick kinds--maybe I'll try that.
Angela
If you go to chewing gum- do use the kind that is good for your teeth. Our Public Dental Hygienist suggests a gum that has Xylitol in it as the first or at least the third ingredient. This stuff strengthens your teeth according to reports...Ice Breakers, Trident-X Care, Stride aslo has it but not as much as the other 2..I too have a similiar mouth problem my dentist and family dr cannot dx....sounds so similiar--but not painful--just aggrivating-also, when dentist examines--nothing hurts-can't see anything.
I haven't chewed gum in years.... I stopped because I have too many fillings. My symptoms seem to be subsiding very gradually. It's more annoying than painful at this point. Thanks for the tip, though.
Angela
Here is a great resource for Burning Mouth Syndrome information.
http://burningmouthsyndrome.boomja.com/
Hi Angela,
I also suffer from Burning Mouth Syndrome. Mine just started in November of 2008 after under going some TENSing treatment on my facial muscles and wearing a new orthodic device for a TMJ disorder. My symtoms are very similar to yours. After some research my dentist and I think that my trigeminal nerve may have been irrated by my treatment or the orthodic device. I thought about seeing a Neuroligist but decided to try acupuncture treatments first because from what I read acupuncture is less radical then some of the treatments that Neuroligist have to use to treat Trigeminal Neuralgia. I have had my 1st of 3 treatments and am not sure if this is going to help. The acupuncturist I am seeing is also a medical doctor with a degree in pain management. I will update this blog after my other treatments.
Let us know how acupunture works out for you. I thought about it but didn't have a clue who to go to or whether it would work. My BMS is so much better now that I'm not actively seeking any kind of treatment.
Good luck to you.
Hi, I too am a sufferer of this annoying and sometimes very painful condition. I have no doubt that in my case BMS was a result of anxiety. My old parents were dying off one after the other it seemed. Also I fit the age range in the post menapausal bracket. I am English and in England all the doctors seem to think the problem is psychosematic. Sorry if I spelt that wrong. I have to agree that stress agravates the condition but after 12months of different antidepressants and no cure I have decided that I must learn to live with the problem. I have found that chewing centerfilled Dentyne,Blast is an excellent weapon in my arsenal of weapons against the daily irritation and pain. Also I have found that a sip of chillie sauce is a great pain killer. I don't mind the chillie heat as being English I love a hot curry. The chillie has a natural pain killer which kicks in after the heat wears off. I invented a lozenge to suck during the day. I boil up a few dry chillies in apple juice, add a sweetener, strain into a jug and add two packets of gelatine. I pour the result int empty dentyne chewingum moulds and pop them out when set. I hop-e this is useful to someone it works for me.
good luck Cath
Hi Ladies,
I have had BMS since June/2005 after having Blephoplasty surgery for a drooping eye lid that was affecting my vision... not plastic surgery, and done by a plastic suregon in the hospital.
My face has felt "frozen" ever since...it is now in the 4th yr. for me & my mouth constantly burns and is numb.My tongue, lips, gums and roof of my mouth.
I have been to my GP..no luck, my dermatologist to see if I had Thrush, Lichen Planus, or oral cancer...nothing..then I went to my dentist twice he looked everywhere and also X-rayed, seen nothing.
I went back to the surgeon as suggested by my GP.
He tried to tell me I had Trigeminal Neuralgia..not..I have no pain at all & I know what that is.
I asked for a referral to a Neurologist & he checked me out very thouroughly, from what I understand there was nerve damage done to my face during this surgery somehow & now I am left to deal with this..no further investigation was to be done, but he said my health was remarkable for my age.
I had nothing done to my face previous to this surgery.
The left side of my face (same side as the eye lid surgery)has been numb, burning tongue, no taste, it is very emotionally upsetting along with anxiety. I have taken no medication. Like the other gal said, spicy or acidic foods and drinks make it sore. I don't chew gum, but I will try.
I am now going to acupucture for it I just started and had my first treatment, I will do 3 & see what happens.I research BMS, mouth numbness etc. online and I notice many people that have had dental extraction or other work done on their teeth complain of this also & people you have had their tonsils out. I have lost 15 lbs. due to not being able to eat & my stress is up due to fighting this constantly.
I wish you all well and lets try to find out what is the reason for it..I don't think it has anything to do with Menopause, even men are getting this.I still say it is nerve damage so think back to what you had done, it took me more than a year to connect the eye lid surgery with my numb mouth & I am still trying to get help.
Glenda/Canada
i also have been suffering with bms following tooth extraction 3 years ago. have been to three dental experts,ent,nuerologist,and 2 gp's. no help there. lyrica, cymbalta no help there.am desperate for help. thanks gail
I have had BMS since 2005 and it's now 2009. It started when I made a sudden decision to go back to work full time after 10 years of being at home raising children. I thought it was because I switched lip balms, but they say that BMS is stress related and the transition to work was certainly a big lifestyle change. I can't say that I've been any more stressed or unhappy than usual, and in fact it has been a very happy time (aside from losing my passion for cooking), so the idea of using anti-depressants which would dull my senses was absolutely not appealing to me.
Thus, I've tried Vitamin B-12 supplements, magnesium supplements, and one I haven't seen mentioned yet: ALPHA LIPOIC ACID - I take a 100 mg capsule 3x a day. After over 2 years of trying these supplements the BMS has not gone away.
I will be interested in seeing how acupuncture and the accompanying Chinese herbal remedies help, as this is my next step.
-Sharon, San Francisco
Hello.... I have a question for your majesties , i hope to see any possible answers from you people... I am from Pakistan, my grandfather is 80years old. From the last two days, he s having the symptoms of burning mouth syndrome, but one thing s quite unusual and that is, he does not have any burning feeling, he just feel bitterness at the tip of the tongue and the tip of the tongue has became a bit more reddish than the rest of the tongue. But the bitterness increases progressively through the day exactly like the BMS. So i wanna ask that is it really BMS or could it be any fungal attack or something like that?? Pls help me.
Hello.... I have a question for your majesties , i hope to see any possible answers from you people... I am from Pakistan, my grandfather is 80years old. From the last two days, he s having the symptoms of burning mouth syndrome, but one thing s quite unusual and that is, he does not have any burning feeling, he just feel bitterness at the tip of the tongue and the tip of the tongue has became a bit more reddish than the rest of the tongue. But the bitterness increases progressively through the day exactly like the BMS. So i wanna ask that is it really BMS or could it be any fungal attack or something like that?? Pls help me.
Gee, I don't know, did you see my post "Oral Candidiasis" of Nov. 18, 2006?
http://burningmouth.blogspot.com/2006/11/oral-candidiasis.html
But my symptoms weren't the same as his.
Good luck,
Angela
I have suffered with BMS for about 7 years. All the typical symptoms, including burning of the lips, cheeks, roof of mouth - also bitter and metallic taste, worsening towards the end of the day. I also have geographic tongue. I have had help over the years consisting of cognitive behavior therapy, plus 10mg of amytriptaline, and anti-depressant, as the condition is linked to anxiety. This hasn't helped and the condition is getting worse. Blood tests have all come back as being normal. I have recently been prescribed by a nutritionist vitamin A, omega 7, and zinc. I am a post-menopausal woman. There are some changes to the soft tissue in my mouth: with my tongue it feels like cuts, bumps and rashes, which change from day to day. Please help - nothing seems to work!
Mine started about a month or so after i had 4 teeth filled. The teeth were on top but the burning started after i ate some spicey pizza behind my bottom front teeth and under my tongue, floor of my mouth. then my lips would burn sometimes too. If there was no burning, it just felt irritated like if i looked at my gums or floor of my mouth , it would be beet red but it looked normal. I went to my dentist who recommended b vitamins and stress reduction. i have suffered from anxiety/depression for years. i went off all meds in december. i do not have a metal taste in my mouth. i have TMJ . does anyone else ever get the irritated feeling under the tongue?
Hi, I've been to the GP,the dentist, the GYNO and today the ENT guy today. He's not sure what I have but it may be Burning Mouth Syndrome. Is anyone having symptoms like mine? My mouth feels coated as the day progresses. The inside of my lips are messed up , I'm constantly licking my lips, my tongue isn't in major pain, but down between my taste buds, it feels just raw. Cold stuff like Ice Cream really makes it hurt. I get white bumps pretty often on my taste buds, WOW do they hurt if they rub against your teeth.
He has prescribed a lozenger in case it's yeast and some other pill for the saliva glands.
I didn't realize I was stressed until this stuff started with my mouth, it is really stressing me out.
ANY SUGGESTIONS!!!
I've been dealing with BMS for about a year now.
It started last year after a somewhat stressful trip to see family out of state.
After returning from my trip I made the rounds seeing the denstist, periodontist, general practice doctor, and finally the ENT. I started with the dentist and periodontist because I thought it was a gum issue as my gums often feel swollen and inflammed -- and my teeth hurt as well (they just feel sensitive to hot and cold, but aren't -- if that makes sense). The majority of my "pain" occurs on the top of my mouth on the hard pallete. My tongue feels burnt (I guess) -- mostly it just feel irritated. It also feel kind of swollen.
All of the doctors told me nothing was wrong with my mouth "you have a completely healthy mouth" -- this wasn't helpful. I really just wanted someone to tell me what was wrong. The ENT was the first one to tell me it was BMS. I am finally going to another ENT (at the Mayo Clinic) for a second opinion next week. I feel like there should be more that someone can tell me about all of this! I'm fairly used to the pain and annoyance that this condition causes me on a dily basis.
What I'd like to hear from fellow BMS sufferers is if you often feel like you have a "thick tongue" that make it somewhat difficult to speak. Lately and in the past I find that I'm almost "tripping" over my tongue -- like it's getting in the way almost -- perhaps this goes along with the feeling that my tongue is slightly swollen.
I'd love to hear if this happens to the rest of you.
I hope we all find relief soon.
No, I have never felt like my tongue was thick, nor had difficulty speaking. Bless your heart! As if the pain wasn't enough.
I'd be interested to hear what the Mayo Clinic has to say. I got some of my early information from their website.
Angela
HI,
I first started to get this burning feeling on the roof of my mouth just behind my front teeth about 6 days ago after eating a cheese & onion pasty. I match many of the symptoms as ive noticed a sore throat and my toungue is sometimes a little sore. I only have very mild symptoms and at the moment its more annoying than painfull. I was worried that it could be cancer but having read many posts on the net there have been no indications of that im glad to say. Im due to see the dentist for a check up next week so i will see what he says, I have smoked for a number of years and i smoke cannabis so i thought the worst. It seems there are many things that are triggered by depression and for me this would seem the perfect explaination.
I hope this will go soon and i think with most things, a good diet is the most important action to take. Good luck to all those that have this weird BMS,
Cheers
http://www.burningmouthsyndrome.org/?gclid=CKDIxIaW-5sCFZwA4wod9wHd-w
Just found this which might be usedfull
Yes Nick's link was for Ralapure (RALA - R-Alpha Lipoic Acid) I just ordered some from the States as it isn't available in the UK. The reason it has to be Ralapure is that all other ALAs do not cross the blood-brain barrier in the same way and are not absorbed well. This one is Stabilised R-Alpha Lipoic which apparently makes a huge difference. I got delivery yesterday after having used Holland and Barretts one for a while. It will be difficult to know, if there is any real improvement, whether it is because of the R-ALA or the 25 mg Amitriptylene I take nightly. My escape hatch is crystallzed Ginger. Google the desensitising effects of Capsaicin. Chilli peppers do the same, but the ginger is great!! Good luck everyone - P x
Can I ask how many people who have so far written on this Blog are from the UK, as I am?
I have been suffering with the symptoms of bms since 1999 and despite all efforts to find a cure or some sort of relief, I have yet to be successful. I take Clonazapem and Lyrica specifically for the control of the condition, but nothing alleviates the discomfort completely. The pain always increases later in the day and like another writer here, I do often feel as if my tongue is too big for my mouth and I have trouble forming words without slurring.
I'd really like to track down more sufferers in the UK as most of my contacts are in the USA
I've had BMS for 10 years. I'm a 57 year old female and did not get this after menopause. I live in Philadelphia. I have a friend who lives near by with this condition and several Internet friends who have become a part of private "group" . We let some now people in on occasion.I'm really glad to see this blog and know there are a lot more people out there with this condition. I have a lot to add,but I don't have time right now. I'll get back to you soon. Thanks for starting this up, Angela!
Its nice to hear that Im not crazy. Ive been suffering with BMS since april of 2008. Ive spent lots of money on doctors an dentist an have gotten no relief. I also chew gum a lot since it seems to help a little. The only problem with that is that your mouth gets tired. I am post menapausal and take wellbutrin I wonder if that has something to do with it although I have gone off all my meds an the pain is still there. Hope someone finds a cure This sucks.
I have been suffering with BMS for about a year. I seemed to have developed it after I had my son. I am 36 years old and have not gone through any menopause- hormones are said to be linked. It does however seem worse during certain times of the month! I had my tonsills out 6 years prior to developing bms, and suffered with a chronic sore throat for years. Then came an intermittent bitter taste, and finally the bms (bitterness and sore throat are both gone for now). The bms gets worse as the day goes on. When I wake up in the morning most days, there seems to be no bms, but as the day goes on, it most definately gets worse. I must confess, I don't eat enough veggies and drink Diet Pepsi like water everyday. I'm going to try giving up the pop for a week and increasing veggies as well as iron, zink and b vitamins to see if theres any change. The condition is odd, and not necessarily something that you want to bring up. Every day at work, I just want to announce how my mouth is on fire, but honestly, why bother. I actually think that I had it for a while but didn't take the time to think that there was a problem. It's not something that you have ever heard of, like diabetes. after much searching, I finally found the name of the condition on the internet. I have yet to see a doctor for it, and from what I'm reading, it seems pointless anyway! One day I was dringking orange juice and it was stinging so bad on the tip of my tongue. I gave the tip of my tongue a gentle squeeze and saw that there was a little blood coming out- it seemed as if there might be tiny razor blade size cuts on my tongue as there was no visible cut, but blood could be squeezed out. I have not had this since that day though, so it could have been a coincidence. Nice to yammer on to my bms homies!
10-22-09 Thank you for offering this great blog site and sharing with others.
I fit the stereotypical patient suffering from BMS. I am post-menapausal on HRT, taking Thyroid and am on antidepressants. BMS started this past summer. I swam laps daily for exercise. Then after a number of weeks I noticed a burning around my mouth (swimming the crawl, face in water, exhaling into water). This burning faded over the weekend. I spoke to other swimmers who stated they saw the lifeguards putting chemicals in while people were swimming. So, no more swimming. Then about a week or so later I had some lemonade and >bam!< my mouth hasn't stopped burning.
I saw a gastroenterologist initially thinking this was related to a bilary problem which acted up the same time. I have repeatedly been told no.
I also have a swollen tongue, and it can be embarassingly difficult to speak, especially when the pain gets really bad and the swelling increases. (Then again, my dentist has always remarked that I have a very small mouth -- so maybe that's why I notice my tongue being swollen.)
I notice that when I take a pill, the color of the tablet remains on my tongue for up to a day although though I am drinking copious amounts water.
My primary physician noted there were miniscule, tiny blood blisters and cuts on my tongue, and I also have bumps along the lower inside of my lips. He ruled out thrush and infection and has prescribed high doses of B Vitamins. It's been 3 weeks since starting the B vitamins and so far I don't notice any difference.
The mornings aren't so bad but the end of the day can be pure torment. At the very worst I sleep with my mouth open because it dulls the pain. Guess keeping the the tongue dry from (acidic?) saliva is what relieves the pain? Chewing sugar-free gum helps.
At night I paint the inside of my mouth and tongue with Tincture of Benzoin. It burns like fire at first but then calms down the pain. DON'T DRINK IT.
It was also suggested that I try Mylanta or Maalox because they have aluminum hydroxide. I've been trying that and antacids but don't really notice much difference thus far.
Two other suggestions online:
+suggested drink 1 tsp of baking soda in glass of water in the evening. I have a friend and she & her sister-in-law both already did this and swear by it. For me it feels 'somewhat' better, kind of takes the edge off. Please be aware that it can act as a laxative if you take much more. The first glass helped and a half-hour later I drank another. Oops.
+iron deficiency can cause sore, painful mouth -- but beware when starting to add iron to your diet, too much can cause painful constipation. Pharmacist recommended a slow release tablet and only started the iron supplement 3 days ago. Will let folks know if any improvement.
Take care & good luck!
Marie, I had not heard any of those suggestions except the B vitamins. Interesting.
Best,
Angela
I have found that taking opiate/opioid painkillers to be extremely effective for burning mouth syndrome the painkillers take the pain away 100% for me, i dont think many people have tried them because doctors dont generally prescribe them for this condition because there isnt suffeciant evidence proving they work. Believe me you will need a strong painkiller like high dose hydrocodone if you are not tolerant to opiates but genarally i find that stronger ones work better such as oxycodone (percocet OxyContin, Roxicodone) methadone, dilaudid, and fentanyl work excellent. I had leftover painkillers so i used them and it works!! A duragesic fentanyl patch you wear delivers relief for 72hrs, and you can take something mild like roxicodone or percocet for breakthrough pain, it would be a godsend if doctors would prescribe the pain meds because this is a serious pain that gets so intense i want to just sleep all day. This should be treated as chronic pain i guess the doctors just cannot understand how much pain this ailment actually causes. If any of you have had success with painkillers let me know, if not give it a try and see if they help. Definently consider it. I have heard no feedback on using paainpills for bms as that is the only thing that makes it stop. Trying to help and trying to find out if anyone has attempeted to get them prescribed for this disorder or have been prescribed. I had my meds left over from a surgery thank god. Now where to go from here ............what i have found for this horrible disease is nearly impossible to get prescribed cos they cant SEE ANYTHING WRONG uhhhhgghhh!!!
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