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posted by Angela Winston | 4:14 PM
2 Comments:
My name is Rae and I'm 55 years old. I've suffered with BMS for over 3 years. It started w/o any major event when I woke up with a metallic taste and within a week my ears, throat and lips as well as my whole mouth felt like they were on fire 24 hours a day.
I've tried neurontin, clonozapam and effexor. Effexor decreased my sypmtoms 50% but about 2 months ago my symptoms started returning with increased intensity (just when I thought it couldn't get any worse!). I now also get a sensation in my tongue that feels like needles are being jabbed into it. I find that I'm unconsciously pushing my tongue against the back of my teeth and will end up with sores around the edge of my tongue.
I don't find any food that increases the symptoms or any time of the day where it's worse.
Because my symptoms have come back so dramatically an MRI of my brain was ordered. They found that I may have a pituitary adenoma and more testing will be done to see what's up with that. I'm thinking that this may have something to do with BMS since the pit tumor also effects hormones. I will update my posting with anything of value I find out after my followup appointment.
Wow, that sounds pretty serious. Best of luck, and please do post the results.
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